As the COVID-19 pandemic continues to impact our lives, communities and so much more, the Spinal Cord Injury Research Program is doing what we can to share resources and drive relief efforts with the SCI community.
Generally, COVID-19 is a respiratory (breathing) illness caused by a coronavirus. The symptoms of COVID-19 are similar to the flu: they include fever, cough (dry or wet), and shortness of breath which may appear 2-14 days after exposure.
It is important to practice proper health and hygiene, social distancing and to stay home as much as possible to reduce risk! The following information and resources are specific to COVID-19 response and Spinal Cord Injury/Disability. This is a growing list and will be updated periodically as new information comes in.
Prevention of the Coronavirus
- Wear a mask
- Practice physical distancing (staying 6 feet away from others), avoid large groups, and stay home when possible. If you do stay home, it is important to know you are not alone and can access services or connect with your local SCI organization via phone, online or by other means
- Call your doctor before you visit to let them know if you are unwell and have other health concerns
- Wash your hands regularly with warm soap and water for 20-30 seconds
- Clean all surfaces regularly that you touch every day including your phone, joystick and wheelchair armrests, tray, push rims…
- Keep 30 days of medical supplies (catheters and dressing supplies) and medication on hand
- Prepare your Emergency Kit
Attendant Services Issues
- Consider asking your attendants if they do not live with you to wear a mask while in your home especially when they are providing physical assistance and are within six feet of you
- Send attendants home who are not well
- Ask attendants to wash their hands when they arrive and before they provide any assistance.
- Be sure your attendants and you wash your hands after all assistance
- Have a back-up plan if your attendant does not come to work or is sick. Plan ahead by taking THESE steps
- Read CareAcademy’s COVID-19 Guide for direct caregivers
If You Are Sick, or Think You Might Have COVID-19
- Isolate yourself at home if you develop respiratory symptoms
- If you are experiencing any shortness of breath (especially persons with high level injuries) you should go to the hospital
- Call your local public health authority for advice before going to the hospital. Please see Mount Sinai updates for patients: COVID-19 Facts and Resources
- Read this information from the CDC on COVID-19 and its Symptoms
- If you have a spinal cord injury and use a ventilator, c-pap, or cough assist device, speak to your health care provider or respiratory therapist regarding what precautions you, your family and attendants should take in your home
- Clean your equipment and replace filters regularly as per your device manual
- Ensure you have an adequate supply of filters and tubing
- As of Tuesday, April 6, all residents of New York State ages 16 and over are eligible for COVID-19 vaccination. COVID-19 vaccination are free and is provided regardless of immigration status
- Eligible New York State residents should check the New York State and New York City vaccine websites for information about where to get vaccinated.
- 877-VAX-4NYC (877-829-4692) vaccine hotline. The City’s hotline can be used to make or change an appointment at a City-run site.
- Pharmacies: Numerous pharmacies throughout NYC offer COVID-19 vaccine appointments. Available appointments at many NYC pharmacies are shown at vaccinefinder.nyc.gov. Patients can also inquire at their local pharmacy to see if vaccination is being offered.
- Blocks of appointments have been reserved at City-run vaccination sites for people 65 years and older and for people who live in certain ZIP codes. These appointments can be booked online (vax4nyc.nyc.gov) or by calling 877-VAX-4NYC.
- Some sites have walk-in vaccination services for people 50 years and older and one
accompanying companion. For a full list of City-run sites, including those with walkup appointments available, visit nyc.gov/vcc under “Find City-run Vaccine Sites in Your Borough.”
- Free transportation to and from vaccination sites is available for people 65 years and older and people with disabilities. People can arrange for transportation when booking their appointment using the 877-VAX-4NYC hotline or by calling the hotline after making a booking. Transportation is available to and from any vaccination site in NYC, not just those run by the City.
- Homebound Vaccination Program. The City has a program to vaccinate fully homebound New Yorkers in their homes. Only people who are fully homebound — that is, they cannot leave their homes even with assistance — are eligible. Interest in the program can be expressed via a form on vax4nyc.nyc.gov or by calling 877-VAX-4NYC.
- Per NYS requirements, vaccination sites may require proof of residence in NYS or NYC and proof of employment status if eligible based on employment category. A list of types of acceptable proof is available at nyc.gov/covidvaccine.
- There are a lot of myths on the internet about COVID-19 vaccines. Mount Sinai is working with a company called NewsGuard to provide the most accurate information. If you’ve heard something that sounds questionable and want to know if it’s true or not, you can look it up in NewsGuard’s report on the top COVID-19 vaccine myths.
- Check the advice from your local governmental health authority every 24-48 hours. You can also text COVID to 692692 to receive that latest NYC updates.
Take home messages about COVID-19 in people with SCI
- People with SCI are not at a higher risk of getting infected with the COVID-19 virus.
- The early symptoms people with SCI experience can often be confused with UTI.
- Cough and fever may not be as severe as compared to people who have COVID but do not have
- The severity of symptoms and disease course of COVID-19 in people with SCI, so far, is not as bad
as initially expected
- Age and underlying secondary conditions may still be risk factors, more information is needed.
- It is still very important to minimize the risk of exposure to COVID-19 by washing hands, wearing
a mask, and social distancing.
*These take home messages are based on the published, peer-reviewed evidence as of November 24, 2020.
Spinal Cord Injury Research Center Weekly Virtual Events: Our support groups are now virtual!
List of Adaptive and Inclusive Home Workouts: We have identified the following adaptive fitness resources available online that you can access to help you stay active and healthy at home!
Nutrition and SCI during COVID-19 Resources: Our Complete nutrition guide during the COVID-19 Pandemic
Mental Health and SCI Resources: Our Complete guide to your mental health during the COVID-19 Pandemic.
Infographics for food delivery and other resources: Putrino Lab created COVID19 inclusive instructions for ordering food to neurorehabilitation activities that can be done from home.
Coronavirus (COVID-19) and spinal cord injury / disease and disabilities: Glen House, MD discusses the Coronavirsus (COVID-19) and the unique issues that need to be considered for individuals with a spinal cord injury/disease and other functional disabilities.
Discussing COVID-19 and Spinal Cord Injury: Northwest Regional Spinal Cord Injury System video presentation discusses issues for people with SCI and a diagnosis of COVID-19, the pros and cons of in-person routine care, and strategies for minimizing exposure from caregivers.
Ask an Expert Series: Spinal Cord Injuries and COVID-19 This series offers expert advice from clinicians, researchers and professionals regarding SCI and disability during COVID-19.
Ask Nurse Linda: COVID-19: Christopher & Dana Reeve Foundation Ask a Nurse discussion on COVID-19 and SCI.
Respiratory Care (COVID-19): SCI Everything videocast discusses respiratory care for people with spinal cord injury during the current COVID-19 pandemic
SCIRE Community COVID-19 Video Series: The SCIRE project has a series of COVID-19 and SCI related video’s including medical concerns, working from home, mental health and numerous topics for for Individuals with an SCI.
Providing Resources for People with SCI During the Pandemic: Mount Sinai SCI was pleased to host “Providing Resources for People with SCI During the Pandemic” webinar to address unique issues that need to be considered for individuals with a spinal cord injuries such as extra hygiene precautions and emergency preparedness during the COVID-19 Pandemic.
SCI: Moving Forward A Response toCovid-19/Coronavirus: In response to the widespread effects of the Covid-19 pandemic on the SCI community, the North American Spinal Cord Injury Consortium (NASCIC) created a 10-part webinar series where experts presented on the topics that matter most to people living with a spinal cord injury at this time..
FAQs About COVID-19 and SCI/D: Dr. Thomas Bryce, medical director of our Spinal Cord Injury Program answers frequently asked questions about COVID-19 and SCI for New Mobility Magazine.
The Coronavirus and Spinal Cord Injury: To better understand how a spinal cord injury increases your risk, the Christopher & Dana Reeve Foundation has put together a great resource for you to read through.
COVID-19 Resources for People with Disabilities: The following information has been gathered specifically to inform people with disabilities on the resources available to the population during NYC’s response to the COVID-19 outbreak.
Mayor’s Office for People with Disabilities (MOPD): If you are a person with a disability with questions or concerns regarding NYC’s COVID-19 response you can reach out to this office.
Disability and Covid-19: Covid-19 guide for People with Disabilities and Older Adults
Center for Disability Rights: Action Steps for Attendant Service Users in Response to Coronavirus Disease 2019 (COVID-19)
Medicare Coronavirus Update: Medicare expands coverage for telemedicine to help seniors and people with health problems stay home.
MTA Coronavirus Updates: In response to COVID-19: Starting Thursday March 19, Access-A-Ride will no longer be scheduling shared rides. You’ll still be able to travel with a personal care attendant or guest.
COVID-19 Disability-Specific Coverage: New Mobility’s Disability-Specific Recommendations for COVID-19.
Coronavirus disease 2019 (COVID-19): What do Older Adults and People with Disabilities Need to Know?
Preventing COVID-19: Hand Hygiene for People with Spinal Cord Injury: This advice is meant to address the COVID-19 pandemic. Certain supplies may be limited but you can still protect yourself and prevent infection using the cleaning products you have; soap and water is always better than nothing.
Wheelchairs Users should take these precautions for the COVID-19 Virus: Wheelchair user precautions you can take to stay healthy and safe!
Precautions for Wheelchair and Assistive Technology Users: Precautions for COVID-19
NYC Free Meals: Three free meals will now be available daily for ALL New Yorkers in more than 400 Meal Hubs across the 5 boroughs. To find a location near you or text “NYC FOOD” to 877-877
Stores offering Custom Hours to High Risk Population: As a result of COVID-19 response, some stores have created dedicated hours for seniors, people with disabilities and other vulnerable populations. Visit link for a frequently updated list.
COVID-19 Nutrition and Shopping Guide: New Mobility guide to nutrition and shopping during the Covid-19 crisis.
ACL: Administration for Community Living has COVID-19 information specific for people with disabilities and older adults.
US Dept of Veterans Affairs: Novel Coronavirus Disease (COVID-19) Information
COVID-19 Coronavirus and Veterans: Paralyzed Veterans of America COVID-19 News & Resources
COVID-19 Information: By and For People with Disabilities
Insurance and COVID-19 What to Know: Insurance providers are adapting coverage and services in response to the public health crisis created by the spread of COVID-19.
Invisible Hands Deliver: A free delivering service for those who do not feel safe leaving their homes during the COVID-19. They currently are making deliveries to Queens, Brooklyn, Jersey City & Riverdale.
Pets & Service Animals: How to Prepare your Pet or Service Animal for Emergencies
Note and Disclaimer
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This guidance was created by experts in the SCI Community on April 9, 2020. This document is based on the best available evidence at the time of release. We can’t guarantee that the guidance is up to date or current as the pandemic is changing daily.