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Spinal Cord Injury Information Pages

This site is a free and informative resource for those living with a spinal cord injury or other disabling injuries or diseases of the spine. It is meant to be a “best of the web” site for SCI health and caregiver information. Visit regularly for updated resources, news and more.

American Spinal Injury Association

The American Spinal Injury Association (ASIA), formed in 1978, publishes the International Standards for Neurological Classification of Spinal Cord Injury (ISNCSCI), which is a neurological exam widely used to document sensory and motor impairments following spinal cord injury (SCI). The ASIA assessment is the gold standard for assessing SCI. ASIA is one of the affiliated societies of the International Spinal Cord Society.

Christopher and Dana Reeve Paralysis Resource Center

The Reeve Foundation is dedicated to curing spinal cord injury by funding innovative research, and improving the quality of life for people living with paralysis through grants, information and advocacy.

Spinal Cord Injury Information Network

The Spinal Cord Injury Information Network offers educational materials and information on services of the UAB Spinal Cord Injury Model System (UAB-SCIMS) along with links to national organizations, government agencies, commercial products, and educational resources related to spinal cord injury.

United Spinal Association

United Spinal Association is a national 501(c) (3) nonprofit membership organization dedicated to enhancing the quality of life of all people living with spinal cord injuries and disorders (SCI/D), including veterans, and providing support and information to loved ones, care providers and professionals.

Administration for Community Living

National Network to maximize the independence, well-being, and health of older adults, people with disabilities across the lifespan, and their families and caregivers.

DisabilityInfo.gov

Managed by the U.S. Department of Labor’s Office of Disability Employment Policy (ODEP), this website is dedicated to providing in-depth online access to disability-related information. There are extensive resources on this site, including details on how to apply for disability benefits, find a federal government job, and other resources on disability laws, services, education, and healthcare.

Paralyzed Veterans of America

Paralyzed Veterans of America Leadership Team has worked tirelessly to improve the quality of life for veterans and all people living with spinal cord injury and disease through medical research, advocacy and civil rights for all people with disabilities. 

Blood Clots: What You Should Know

Our consumer oriented guide to blood clots targeted at people with SCI was created  for the Consortium for Spinal Cord Medicine that has now been published on the Paralyzed Veterans of America.

International Ventilator Users Network

International Ventilator Users Network’s mission is to enhance the lives and independence of home ventilator users and polio survivors through education, advocacy, research and networking.

The National Family Caregivers Association

CAN (the National Family Caregivers Association) is a non-profit organization providing education, peer support, and resources to family caregivers across the country free of charge.

National Rehabilitation Information Center

NARIC Web site, our gateway to an abundance of disability- and rehabilitation-oriented information organized in a variety of formats designed to make it easy for users to find and use.  As a leader in providing interactive information to the disability and rehabilitation community, NARIC’s Web site continues this tradition by putting the information into the hands of the users through online publications, searchable databases, and timely reference and referral data.

The National Council on Independent Living

The National Council on Independent Living is the longest-running national cross-disability, grassroots organization run by and for people with disabilities. Since its inception, NCIL has carried out its mission by assisting member CILs and SILCs in building their capacity to promote social change, eliminate disability-based discrimination, and create opportunities for people with disabilities to participate in the legislative process to affect change.

Academy of Spinal Cord Injury Professionals

ASCIP membership provides medical professionals advanced learning opportunities and professional networking that enhances your professional interests, as well as those of your patients and their families. ASCIP is a not for profit incorporated association comprised of 4 professional sections: American Paraplegia Society (APS), Association of Spinal Cord Injury Nurses (ASCIN), Psychologists, Social Workers & Counselors (PSWC) and Therapy Leadership Council (TLC).

International Spinal Cord Society | ISCoS

The International Spinal Cord Society (ISCoS, formerly IMSoP) promotes the highest standard of care in the practice of spinal cord injury for men, women and children throughout the world. Through its medical and multi disciplinary team of Professionals ISCoS endeavours to foster education, research and clinical excellence. ISCoS has a membership of Clinicians and Scientists from 87 countries. They regularly update their knowledge at the Annual Scientific Meeting held in a different country each year. 

ELearnSCI.org

International Spinal Cord Society (ISCoS) took the initiative to develop elearnSCI.org, a web-based teaching and educational resource. elearnSCI.org specifically addresses the current lack of professional development opportunities for medical and paramedical professionals involved in SCI Management due to the limited access of up-to-date SCI training and learning materials/ resources.

Abilities.com

 Abilities.com enlightens and entertains with articles, videos, contests and information on disability products, adaptive sports, assistive technology, community heroes, and inclusive recreation. They organize National Abilities Expo bringing necessary products and services together under one roof for the Community, their families, caregivers, seniors, and healthcare professionals. The New York Abilities Expo occurs in early spring.

National Disability Institute

They collaborate with hundreds of organizations throughout the country—from financial institutions and employers to government and community organizations—to empower people with disabilities and their families to build a better financial future.

HelpHopeLove

A nonprofit that supports community-based fundraising for people with unmet medical expenses due to injuries or illnesses.

Disclaimer:
Linking to publications, materials or websites of other organizations or entities does not constitute endorsement by Mount Sinai of such publications, materials or websites. Mount Sinai provides these references and links because they may be of value to persons interested in SCI.