Events

The Spinal Cord Injury Center works to advance the research, treatment, and awareness of spinal cord injuries through a robust calendar of webinars, fairs, conferences, training opportunities, trips, outings and other community events.

  • Annual Spinal Cord Injury Research Fair: Our annual event invites the entire community to discover the latest breakthroughs in SCI research, explore currently recruiting research studies in the metropolitan area, and connect with Spinal Cord Injury community groups. 

See Calendar below for our upcoming events:

Brain and Spine Implants in persons with Spinal Cord Injuries

← Back to “Ask The SCI Expert” Series

Our new newsletter series “Ask The SCI Expert”  highlights a particular popular topic in Spinal Cord Injury Research and our experts answer the most common questions regarding the topic. This month we are discussing Brain and Spine Implants in persons with Spinal Cord Injuries’ with Dr. Noam Harel.

Headlines were made around the world recently when a lab in Switzerland published an article about using brainwaves to control an implanted spinal cord stimulator: “Walking naturally after spinal cord injury using a brain–spine interface”.

This combined device has been used in one person so far. A 38-year-old man with chronic C5-C6 incomplete SCI. See this link for a video of him using the device.

Q: What is a brain-spine interface?

A: This system has two parts: The brain interface is surgically implanted inside the skull. It can detect electrical activity coming from the surface of the brain (the cortex) while it thinks about walking. The brain interface does NOT stimulate the brain. It just records brain electrical activity. The spine interface is a surgically implanted epidural stimulator in the lower back. It receives signals from the brain interface via an external computer processor. The computer tells the spine implant how to deliver its electrical stimulation to nerves controlling different leg muscles during walking.

Q: Is it wireless?

A: NO! Not really. The brain interface can send its recording data wirelessly using EXTERNAL antennas mounted on top of the head to an EXTERNAL computer mounted on a walker or a backpack. The external computer then sends instructions wirelessly to the implanted pulse generator (implanted under the skin near the belly). The implanted pulse generator then sends signals/power to the epidural stimulator through a wire threaded under the skin. So there is a combination of multiple internal and external parts and wires.

Q: Is this a cure for SCI?

A: No unfortunately. This is more of a computer-assisted digital bridge across an injury, not really a biological cure for injury. For the foreseeable future, the best treatments for SCI will improve nerve circuit ‘plasticity’. In combination with stimulation and exercise, plasticity can lead to improved function.

Q: What are the risks?

A: Because this requires 3 different surgical implants (brain interface, spinal interface, and the internal power generator), there is a risk of surgical complications – especially bleeding and infection. Because it requires brain surgery, there is a further risk of brain damage resulting in weakness, difficulty speaking, and/or seizures. There is also a risk that the technology does not work properly in every person. And you need to be aware that once you get an experimental implanted device, you would not be eligible to participate in most future research studies of future-generation implants.

Q: Where can I get one?

A: This has been the only brain-spine interface used so far in the world, under a regulated (and very expensive) research study in Switzerland. The technology is still being developed. Unfortunately, you can’t get this placed anywhere else at this time.

Q: What can I do to prepare for this technology?

A: Doing everything you can to keep yourself in the best medical condition possible will improve your body’s ability to respond to new treatments as they are developed. Also, it may not always seem fair, but most medical research trials seek to enroll people with SCI who have as few complications as possible. So it’s important to keep your skin intact and your limbs stretched.

Returning To Work After A Disability Series Videos

 

Our First webinar of our 8-part monthly webinars on benefits of vocational services for people with disabilities. Speaker, Terry Hopkins, a Certified Vocational Counselor for the Department of Rehabilitation Medicine and Human Performance will discuss what are vocational services, what types of services are available and how do these services benefit you. Followed by a Q&A on your questions on training, job placements, education and more.

Our second webinar of our 8-part monthly webinars on benefits of vocational services for people with disabilities. This webinar features guest speaker, Michael Sanders, who is currently the head of partnerships for NTI@Home, www.ntiathome.org, a non-profit that helps individuals with disabilities and family caregivers back into the workplace. Join us as we discuss the many options and support services available to you to help you overcome barriers and find successful employment and learn further about the remote support, training and vocational rehabilitation services NTI@Home provides. Michael Sanders is currently the head of partnerships for NTI@Home, www.ntiathome.org, a non-profit that helps individuals with disabilities and family caregivers back into the workplace. NTI@Home partners with Fortune 500 organizations to provide work-at-home jobs to individuals with disabilities nationwide. As a TEDx speaker, Michael has presented impactful workshops related to the job search, disability rights, DE&I initiatives, and how to achieve success in work-at-home positions. He is also a founding member of both the Boston Inclusion Community and the Into the Streets Program, increasing disability awareness throughout the United States.

Our third webinar of our 8-part monthly webinars on benefits of vocational services for people with disabilities. This webinar features guest speaker, Terry Hopkins, a Certified Vocational Counselor for the Department of Rehabilitation Medicine and Human Performance. She discusses the current work incentives from the social security administration that allows for people with disabilities to work without losing their benefits.

Mount SCI Member Spotlight Series: Farzana Ali

← Back to SCI Member Spotlight

Farzana Ali

 

14 years ago Farzana Ali was a full time student planning her future vacations with her sister when she and her family were hit by a drunk driver and she sustained a spinal cord injury. Her sister and aunt did not survive the accident. And just like that, she lost her best friend, her sister, without even having a chance to say goodbye. Farzana was transferred to Mount Sinai Rehab and completed her inpatient rehabilitation. Although Farzana had many challenging obstacles ahead, she did not let her limitations define her. Farzana dream was to become a doctor, she completed medical degree and is now completing her doctoral degree in biomedical engineering and plans to pursue a career in diagnostic radiology. This past month we were fortunate to reconnect with Farzana and talk about her life post-injury.

What do you most remember about your time at Mount Sinai Rehab?

During the most painful time of my life, I was blessed to be at Mount Sinai for acute rehab, where I found my new family. Everyone I met at the hospital treated me with kindness, and encouraged me to do my best in rehab and daily activities. We always had fun events run and organized by Jim and Angela. My most memorable time was the Valentine’s Day, when I woke up surprised by a teddy bear from my therapists, Kate and Liron. Then, Beth helped me make a pink heart with a pipe cleaner for Dr. Stein. He was very appreciative of my craft, and that made me really happy!

Following rehab, how were you able to transition back into the community?

I was eager to return home to my family. But I was transferred to a nursing home in Queens, due to lack of insurance coverage for necessary home services. Jim and other Mount Sinai personnel helped me obtain ramps to make our apartment more accessible. The hardest part of my transition to community was learning the proper way to take care of my healthcare needs. I had to go through many trials and errors and unforeseen circumstances to gradually develop a care plan that works best for me. My best memories of this time were the phone calls and emails I received from my family members and friends from Mount Sinai. I was going through many health complications and adjustment difficulties at that time. But knowing that so many people cared about me, made that tough transition more bearable.

How did you become interested in Medicine?

From my childhood, I admired doctors for the amount of work they put in to take care of patients. As I studied biology in school, I became more fascinated by the human body. I wanted to pursue a career in medicine to learn about current understanding of diseases and advance that through research. But mostly, I loved the aspect of being able to connect with so many people through service.

What are you passionate about now?

I am very passionate about teaching, because it not only enhances my own understanding, but also allows me to pass on the knowledge that was bestowed upon me by my predecessors. It is a privilege to be able to connect with future physicians and scientists, and look at medical problems through their diverse perspectives. I have volunteered to teach since my undergraduate career, and continually seek out opportunities for teaching during my medical school training. I love sharing my enthusiasm with the students, and getting inspired by their intellect and curiosity.

What type of Advocacy work are you involved in?

I am focused on systems advocacy, with a particular interest in access to higher education for individuals with disabilities and access to healthcare for undeserved communities. As a member of the Philanthropy and Community Engagement Committee at the University at Buffalo, I have performed presentations and led educational workshops on disability law and accommodation at the doctoral level studies in medicine and science. I am a past participant of the Empower SCI rehab camp, that I joined after receiving grants from the United Spinal NYC. I have subsequently used their online fundraising platform to raise awareness about the importance of spinal cord injury rehab. In addition, I have conducted educational presentations and workshops on disability rights and disability justice movements during their summer programs. I am equally passionate about health equity, and facilitated discussion on health disparities during the Annual Igniting Hope Conference. I presented ideas to the broader audience on establishing equity and justice in provision of healthcare to the black community.

What advice would you give to others who are recently injured or transitioning back into the community?

I would like to tell individuals who are recently injured or transitioning back into the community to stay focused on their primary goal, whether it is going back to school, getting a job, improving physical strength, or working on relationships. Stay in touch with those who care about you and reach out to those who are knowledgeable about the resources you need to reach your destiny. There may be many obstacles on your way, such as difficulties with housing, transportation, homecare, etc. In time, all these problems will get better or resolved. But the maturity and strength you gain from these experiences will help you become successful and happy! I had to go through many struggles when I moved from Long Island to Buffalo. But if I had not taken that difficult step, I would have missed out on the most fun and fulfilling four years of my life.

Is there anything else you would like to share?

I am truly grateful to the Mount Sinai SCI team for letting me share my story and for their continual support throughout the years. To my readers, thank you for taking the time to patiently read this far. Let us continue to be kind to each other, and show the world that no negative circumstance can keep us from being our best self!

Mount SCI Member Spotlight Series: Nyree Stevens

← Back to SCI Member Spotlight

Meet Nyree Stevens

Nyree Stevens is a 29 year old Bronx born artist who uses a mouth stick to create art. Ten years ago she was a victim of gun violence sustaining a high level spinal cord injury. Nyree underwent inpatient and outpatient rehabilitation at the Spinal Cord Program at Mount Sinai Hospital. She has stayed an active member of our Life Challenge Program and Women on Wheels support group. She will be participating in her first Art Showcase at the RAW New York City PREMIERE at the Mellrose Ballroom tonight, January 29th at 7pm. For More information on her upcoming show visit:  https://rawartists.com/sittinprettii-
What do you most remember most about your time in rehabilitation at Mount Sinai?
I remember learning how to drive wheelchairs with different joysticks around obstacles, I was determined to drive with my hand which has become more difficult over time but I still haven’t given up. I met many wonderful people. The first time I went outside with one of my therapists was a bittersweet moment as I was seeing people from a different eye level. This was a bit much for me at the time. I remember everyone saying I was so calm and always smiling instead of being angry all the time. I guess I was happy to still be alive so I couldn’t be that mad.
What were the biggest obstacles you faced when transitioning back into the community? 
After leaving the inpatient rehabilitation unit I was ready to get back into the world even though I was still in denial about my injury and how it affected me and I was determined to get back to life as it was before. The hardest part of it all was I had to adjust the a lot of things such as transfers, showers at home, getting dressed which takes like 25 minutes instead of 5 minutes and depending on someone for everything. This definitely humbled me. It’s like a private life didn’t exist anymore. It was hard to overcome, but I’m used to it now.  In the beginning it was very overwhelming.

Were you always interested in painting? What are your other passions?

In middle school I use to draw, but I would say I’m even better now. It’s a bit challenging but that’s the best part for me. Painting gave me a type of independence back which is a great feeling.  My self-therapy also distracts some of my nerve pain which is definitely a good thing, I would say I’m better now than I ever was. Right now I’m most passionate about my art work and advocacy for people with disabilities I would love to become an advocate for people with disabilities because some people take advantage of people who have disabilities which I hate to see. Also I’m most passionate in still becoming a model.

What advice would you give to others who are recently injured or transitioning back into the community after Rehab?

Over the ten years of being injured I can say I’ve really enjoyed some moments such as, skydiving, skiing, water skiing, paragliding etc. I don’t think I would have done these things if I was walking but being that my fear was getting shot and I overcame that. And it allowed me to jump out of a plane which was pretty insane. As I always tell newly injured people, you were given a second chance at life so live it the best way you can. We are chosen for a reason, so always stay humbled. And remember there’s always someone in a worst situation then you. And never keep your depression silence reach out to someone for help.